Nansen’s Park
3465 Victory Blvd.
Staten Island, NY 10314
Ticket Presale Beings: 8/8/2023
Presale Ends: 9/7/2023
Regular Pricing tickets sales: 09/08/2023
Rally For Reed
🖤 In March 2020 Reed, now 6, was diagnosed with Morquio A Syndrome. Morquio A is an autosomal storage disorder that occurs in every 200,000-300,000 births. His body does not make the enzyme to break down certain glucose molecules, therefore he receives the synthetic form of this enzyme in an weekly infusion. In short, if he doesn’t receive this enzyme, those glucose molecules will attack his organs and skeletal system. It is a progressive disease, which means it will get worse over time.
🖤 He gets his infusion in the comfort of his home now, and that has been such an improvement in the quality of life for him and for us.
🖤 Reed loves to play the drums and listen to music by the Beatles. He is the life of the party and everyone’s favorite little boy. He amazes us every day with his kind, super smart, and caring qualities.
🖤 March 2023 : Reed underwent bilateral hip, knee and growth plate surgery to correct his deformities.
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